dancing in the shadows

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living with porphyria means embracing outer darkness, yet inner light. 

the sun might be my enemy, but the darkness is my super cool-ass bff. 

i transform pain into poetry, vulnerability into strength, and the burgundy loaf lifestyle into a wicked source of dark humor. 

my happiness is a testament to my resilience, a defiant roar in the face of chronic illness, and a disturbing fuck-you to everyone who thinks sick weird people shouldn’t be happy. eat my shorts, kids. 😀

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